We all know that cancer is a scary word, a dreaded word to hear, especially when it is used to describe some problem in our body. I have been through that, and it is beyond scary. Having been diagnosed over 6 years ago, with an uncurable type of blood and bone cancer, I continue to live another day, and another. Certain rare diseases do not get the funding for needed research and for those patients who suffer these diseases, they do not hold much hope for survival. "It is a matter of time." First of all, about 10 yrs ago, bone marrow transplants were first tried on a small number of multiple myeloma patients. This is still considered an experimental procedure. Back then, health insurance would not pay for the transplants. To this day there are doctors who do not believe the transplant extends life anymore than more conventional treatment. In my case, I believe it gave me life. Over the years I have had intense radiation, so much I can't have anymore, and a lot of chemo, have been in and out of remission. Then along came Thalidomide. The 60's drug that was given as a sedative, sleeping pill, to pregnant women. This was disasterous of course, causing many "Thalidomide babies", babies born with no arms, or no legs and other birth defects. Then a few years ago they found that Thalidomide had some affects on certain cancers and after time, it seemed to have some good results with myeloma patients. I was on Thalidomide for 10 months. Though I was never able to get up to the heavy daily dose they wanted me on, I took 150 mg a day until I began having nerve damage and had to quit taking it. Now 8 to 10 months is about the limit that the drug is effective against myeloma anyway. But I believe the drug helped me. After test showed some myeloma activity again, I was put on a low dose, 50 mg a day, of Thalidomide. In two months, my blood counts were all normal and I was in remission again. Now to the point, the reason for this post. Last week I received a phone call from a gentleman I really do not know very well. He told me about an article in the Boston Globe containing info on a new cancer drug that has been used with myeloma patients in clinical trials, and seems to have some very good results. I found the article and sure enough, they seem to have found something that has shown to be successful in containing multiple myeloma. Dr. Ken Anderson of Dana Farber Hospital stated that there is hope that this medication used with conventional therapies or other novel treatments, "we hope we will make myeloma a chronic disease, and ultimately, perhaps, lead to a cure." To me and many myeloma patients, there is hope. Another reason to continue the fight, to never give up. To other cancer patients, if myeloma can be nipped in the bud, so can other terminal diseases. There is always hope as long as the research goes on. Myeloma has always been a death sentence, how long would it take to kill. Now, who knows, if one can live long enough, they may find the cure. I'm sure that you all have been touched in some way, loved ones, friends, someone with cancer. I am just passing on this hope the only way I know how, using myself as an example. Hopefully this type of discovery will inspire somebody who has given up all hope of a cure and resigned themselves to accept the short road, to take the "10" count, in short, curl up and die. Well, bull!! We have to continue the fight and again, who knows what will come along tomorrow. NEVER give in, and never let your loved ones or your friends who suffer from these diseases give in, help them live! You will feel extra good when you do.
Bill